June always seems so busy. The midpoint of the year, things start /
stop -- school ends, camps begin and the weather eventually settles
down. The beginning of this June saw James at his first graduation. He
graduated from Pre-K successfully. ;) They did a really cute recital
of a bunch of songs and dances and the school director gave her
teary-eyed farewell to another class. James was the first one to come
out and actually participated in about half the songs before giving up
and sitting in his seat. I'm sure it was chaotic and overwhelming for
him. Unfortunately I can't seem to get him to understand that there's
no more "Yellow School," as he asks to go just about every day.
Graduation!
The
school offers a summer reading program, designed to really give him a
boost for Kindergarten. He loves writing and can read some sight words
already, his teacher feels that even with the hearing issues he should
be able to keep up. So he'll be back in school for July.
Magic Ears!
On
Flag Day James finally got his hearing aids! In true James style he
took them completely in stride, no adjustment period necessary. We put
them in, turned them on and voila! He realized immediately that they
were helping him hear and takes great care with them (for a 4 and a half
year old anyway). Which is good because at $3500 for the pair, we
can't afford it to be otherwise. The ear molds are dalmation-spotted at
his request -- 102 Dalmations was the movie of the month when we
ordered the ear molds. (g)
We started taking him to Special Ed
twice a week back in March, so he was in school four days a week between
that and his Pre-K. He goes for speech and hearing therapy, along with
repeat evaluations and social exercises. They're on break now, he'll
resume in July for one more month and then be done with it -- he
integrates into normal Kindergarten in the fall.
His teachers
are absolutely wonderful and they adore him. He likes going and has
definitely benefited from the experience. However, all that being said I
will be glad when it's over. I cry every single time I drop him off. I
can't help it, it's just a hard adjustment. He's in a small group and
is the (very obviously) highest functioning child in the class. The
ladies tell me he's very good with the disabled children and is very
helpful to them at playtime, but you can see his confusion sometimes.
That he knows that something is different with the children when he
tries to interact with them. The other parents are actually nicer than
most of the ones at Pre-K and the children are great. But when the
teachers come out to collect/herd them in at drop-off, he kisses me
good-bye and trustingly puts his hand in Ms. Cheryl's and I watch him
walk in. Then I get back in my van and cry as I drive home.
I
try to figure out why this is and I think it's just frustration. This
is my perfect little boy, he's not supposed to have anything permanent
"wrong" with him. He's not supposed to rely on devices or be limited in
any way, restricted for reasons not of his own making. I dread the day
that the other children decide to focus on his small difference, I
would spare him the pain and confusion that will come from mean
small-minded people. His differences should be of his choosing, his
unique personality, not forced upon him for whatever reason this
happened. Yet his road begins with a little more burden than I think is
fair and all I can do is help him carry it, I can't take it away.
That's why Mommy cries on the ride home.
Though I will share this
story, from when the process first began. In our first "IEP" meeting,
when we were deciding what his therapy and educational needs would be,
we met with his Special Ed teachers, speech therapist and the school
board person, etc. As they laid out his evaluation and plans, they were
very painfully, obviously trying NOT to use the actual term "Special
Ed" in any form. Granted we had come from work and were in uniform, and
my husband can be scary-looking but I mean they were really
pussyfooting around the term. I think they were just worried that we'd
be upset or feel that James was being labeled, I don't know. Finally we
said to them, "Look ladies it's ok. We know he has additional needs
and we want to get him whatever he needs to be successful, so it's
really alright." Anyway the meeting went fine and we went home with all
the paperwork and folder full of welcome packet, etc. So we go home
and I open the folder to read the class information and what do I see?
What's the first thing in the folder, right on top, glaring out at me?
An application for the Special Olympics. Go figure. ;)
Not giving up.
1 day ago
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